Titre

Participatory Disease Surveillance Systems: Ethical Framework.

Type
synthèse (review)
Institution
UNIL/CHUV/Unisanté + institutions partenaires
Périodique
Auteur(s)
Geneviève, L.D.
Auteure/Auteur
Martani, A.
Auteure/Auteur
Wangmo, T.
Auteure/Auteur
Paolotti, D.
Auteure/Auteur
Koppeschaar, C.
Auteure/Auteur
Kjelsø, C.
Auteure/Auteur
Guerrisi, C.
Auteure/Auteur
Hirsch, M.
Auteure/Auteur
Woolley-Meza, O.
Auteure/Auteur
Lukowicz, P.
Auteure/Auteur
Flahault, A.
Auteure/Auteur
Elger, B.S.
Auteure/Auteur
Liens vers les unités
ISSN
1438-8871
Statut éditorial
Publié
Date de publication
2019-05-23
Volume
21
Numéro
5
Première page
e12273
Peer-reviewed
Oui
Langue
anglais
Notes
Publication types: Journal Article
Publication Status: epublish
Résumé
Advances in information technology are changing public health at an unprecedented rate. Participatory surveillance systems are contributing to public health by actively engaging digital (eg, Web-based) communities of volunteer citizens to report symptoms and other pertinent information on public health threats and also by empowering individuals to promptly respond to them. However, this digital model raises ethical issues on top of those inherent in traditional forms of public health surveillance. Research ethics are undergoing significant changes in the digital era where not only participants' physical and psychological well-being but also the protection of their sensitive data have to be considered. In this paper, the digital platform of Influenzanet is used as a case study to illustrate those ethical challenges posed to participatory surveillance systems using digital platforms and mobile apps. These ethical challenges include the implementation of electronic consent, the protection of participants' privacy, the promotion of justice, and the need for interdisciplinary capacity building of research ethics committees. On the basis of our analysis, we propose a framework to regulate and strengthen ethical approaches in the field of digital public health surveillance.
Sujets

ethics

influenza, human

public health surveil...

research

smartphone

PID Serval
serval:BIB_61E02C40F7DB
DOI
PMID
WOS
Permalien
Open Access
Oui
Date de création
2019-05-29T12:29:48.451Z
Date de création dans IRIS
2025-05-21T04:29:12Z
Fichier(s)
En cours de chargement...
Vignette d'image
Nom

150d0739-a3fb-4944-ac5a-ec8295dc9f4d.pdf

Version du manuscrit

published

Licence

https://creativecommons.org/licenses/by/4.0

Taille

479.62 KB

Format

Adobe PDF

PID Serval

serval:BIB_61E02C40F7DB.P001

URN

urn:nbn:ch:serval-BIB_61E02C40F7DB1

Somme de contrôle

(MD5):6d23a3917d925907591ca199f69877ce