Titre
Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study.
Type
article
Institution
UNIL/CHUV/Unisanté + institutions partenaires
Périodique
Auteur(s)
Kamm, C.P.
Auteure/Auteur
Barin, L.
Auteure/Auteur
Gobbi, C.
Auteure/Auteur
Pot, C.
Auteure/Auteur
Calabrese, P.
Auteure/Auteur
Salmen, A.
Auteure/Auteur
Achtnichts, L.
Auteure/Auteur
Kesselring, J.
Auteure/Auteur
Puhan, M.A.
Auteure/Auteur
von Wyl, V.
Auteure/Auteur
Contributrices/contributeurs
Anderseck, B.
Calabrese, P.
Chan, A.
Disanto, G.
Engelhardt, B.
Gobbi, C.
Haussler, R.
Kamm, C.P.
Kagi, S.
Kesselring, J.
Kuhle, J.
Kurmann, R.
Lotter, C.
Luyckx, K.
Merkler, D.
Monin, P.
Muller, S.
Nedeltchev, K.
Pot, C.
Puhan, M.A.
Rapold, I.
Salmen, A.
Schippling, S.
Vaney, C.
von Wyl, V.
Groupes de travail
Swiss Multiple Sclerosis Registry (SMSR)
Liens vers les personnes
Liens vers les unités
ISSN
1432-1459
Statut éditorial
Publié
Date de publication
2020-01
Volume
267
Numéro
1
Première page
153
Dernière page/numéro d’article
161
Peer-reviewed
Oui
Langue
anglais
Notes
Publication types: Journal Article
Publication Status: ppublish
Publication Status: ppublish
Résumé
Patient satisfaction is predictive of adherence, malpractice litigation and doctor-switching.
To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing.
Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors.
386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94) ], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%).
A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.
To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing.
Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors.
386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94) ], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%).
A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.
PID Serval
serval:BIB_653FC3378648
PMID
Date de création
2019-10-10T19:54:28.622Z
Date de création dans IRIS
2025-05-20T23:56:52Z