Titre
Meaning in life in patients with amyotrophic lateral sclerosis.
Type
article
Institution
UNIL/CHUV/Unisanté + institutions partenaires
Périodique
Auteur(s)
Fegg, M.J.
Auteure/Auteur
Kögler, M.
Auteure/Auteur
Brandstätter, M.
Auteure/Auteur
Jox, R.
Auteure/Auteur
Anneser, J.
Auteure/Auteur
Haarmann-Doetkotte, S.
Auteure/Auteur
Wasner, M.
Auteure/Auteur
Borasio, G.D.
Auteure/Auteur
Liens vers les personnes
Liens vers les unités
ISSN
1471-180X
Statut éditorial
Publié
Date de publication
2010
Volume
11
Numéro
5
Première page
469
Dernière page/numéro d’article
474
Langue
anglais
Notes
Publication types: Journal Article ; Research Support, Non-U.S. Gov'tPublication Status: ppublish
Résumé
The construct 'meaning in life' (MiL) has become increasingly important in palliative care. Several meaning-focused interventions have been developed recently. The aim of this study was to investigate MiL in patients with amyotrophic lateral sclerosis (ALS) and compare the findings with a representative sample of the German population. In the newly developed 'Schedule for Meaning in Life Evaluation' (SMiLE), respondents first list individual areas that provide meaning to their life before rating their current level of importance and satisfaction with each area. Overall indices of weighting (IoW, range 20-100), satisfaction (IoS, range 0-100), and weighted satisfaction (IoWS, range 0-100) are calculated. Results of our study showed that 46 ALS patients completed the SMiLE: the IoS was 74.7 ± 20.2, the IoW 88.1 ± 10.1, and the IoWS 76.3 ± 20.5. Satisfaction with MiL was negatively associated with disease duration and degree of functional impairment. After adjustment for age, sex, and marital status, the representative sample (n = 977) scored significantly higher in the IoS (82.8 ± 14.7) and the IoWS (83.3 ± 14.8). Compared to the general population, ALS patients list more meaning-relevant areas, are more likely to list partner, and less likely to list health. Thus, response shift seems to be a central coping mechanism in ALS patients. Regarding their major MiL areas, they shift their focus away from decreasing health status and towards supportive relationships.
PID Serval
serval:BIB_3F083466F1AC
PMID
Date de création
2014-01-14T09:31:36.537Z
Date de création dans IRIS
2025-05-20T15:33:31Z