Titre
Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature.
Type
synthèse (review)
Institution
UNIL/CHUV/Unisanté + institutions partenaires
Auteur(s)
Goldstein, Henry
Auteure/Auteur
Akré, Christina
Auteure/Auteur
Bélanger Richard, E.
Auteure/Auteur
Suris, Joan-Carles
Auteure/Auteur
Liens vers les personnes
Liens vers les unités
ISSN
0334-0139
Statut éditorial
Publié
Date de publication
2013
Volume
25
Numéro
2
Première page
109
Dernière page/numéro d’article
117
Langue
anglais
Notes
Publication types: Journal Article Publication Status: ppublish
Résumé
Abstract Parenting a child with chronic disease provides a unique set of challenges for both mothers and fathers throughout all phases of the illness. However, fathers of these children are under-represented in existing research. This review focuses on the fathers of children with chronic disease included in 44 original articles. We address the challenges to the father's role as breadwinner, leader and strength-giver in the family. Three time-periods describe the obstacles fathers tackle when parenting children with chronic disease: a) diagnosis and short-term, characterized by distress, isolation and uncertainty; b) the mastery period, characterized by the struggle to establish routine and by support and spirituality; and c) the long-term, characterized by relationship and personality change, worries and bereavement. Overall, whilst current research has revealed some key themes pertaining to fathers of children with chronic disease, further studies are required to foster the development of support mechanisms for the specific needs of these fathers.
PID Serval
serval:BIB_AC0D6BF96093
PMID
Open Access
Oui
Date de création
2013-01-17T14:09:45.360Z
Date de création dans IRIS
2025-05-21T00:47:10Z
Fichier(s)![Vignette d'image]()
En cours de chargement...
Nom
REF.pdf
Version du manuscrit
published
Taille
308.98 KB
Format
Adobe PDF
PID Serval
serval:BIB_AC0D6BF96093.P001
URN
urn:nbn:ch:serval-BIB_AC0D6BF960937
Somme de contrôle
(MD5):8a91fafdaf7694ba4b356090d4f2226e